I can’t live with my autistic child. Quite a depressing and strong statement isn’t it?
But sadly it is actually one of the most researched sentences by parents in our position.
This article is for all those people in that position and whilst we can’t make all your struggles go away, we may possibly be able to help in some ways.
Challenges of an autistic child
Living with an autistic child can be a challenging experience for parents.
The symptoms of autism can range from mild to severe, and every child with autism is unique, so their needs and abilities may vary significantly.
The struggle to live with an autistic child can arise due to various factors, including communication difficulties, behavioural challenges, and sensory processing issues.
Autistic children may have difficulty expressing their needs and emotions effectively, which can result in frustration and tantrums.
They may have rigid routines and preferences, and any change to their routine or environment can trigger meltdowns or anxiety.
Additionally, autistic children may have sensory sensitivities, such as being sensitive to loud noises or bright lights, which can make everyday activities challenging.
Struggles with wider society
Parents of autistic children may also experience social isolation and stigma.
People who do not understand autism may judge the child’s behaviour or assume that the parents are not disciplining them adequately.
This can result in feelings of shame, guilt, and frustration for the parents, which can further strain the parent-child relationship.
What you can do
If you are struggling to live with an autistic child, it is essential to seek support and resources to help them manage their child’s needs.
Here are some tips for parents in this position:
Seek professional help
Autism is a complex disorder, and it is essential to seek professional help from a qualified therapist or medical professional who specialises in autism.
They can assess the child’s needs and provide guidance on how to manage their behaviour and communicate with them effectively.
Join support groups
Connecting with other parents of autistic children can provide emotional support and a sense of community.
Support groups can also provide valuable information and resources on how to manage challenging behaviours and advocate for your child’s needs.
Look on Facebook and you will be sure to find SEN groups in your area.
Create structure
Autistic children thrive in a structured and predictable environment. Creating a routine that the child can follow can help them feel more secure and reduce anxiety.
Incorporate visual aids
Visual aids, such as picture schedules or social stories, can help autistic children understand expectations and routines. They can also help them communicate their needs more effectively.
Look after yourself
Parenting an autistic child can be emotionally and physically exhausting. It is essential to practice self-care and take breaks when needed.
This can include finding respite care or hiring a caregiver to provide support.
Some people also find comfort in taking up a new hobby or joining a gym. Just some sort of an outlet away from autism can be helpful.
Reach out to friends and family
Things like finding babysitters for an autistic child can be difficult but with that said it is always worth confiding in friends and family.
Speak openly with loved ones, divulging your struggles and difficulties.
They may come forward and offer their support but failing that it is healthy to sometimes unload your problems.
Summary – I can’t live with my autistic child
Living with an autistic child can be challenging, but there are resources and strategies available to help parents manage their child’s needs effectively.
Seeking professional assistance, joining support groups, creating a structured environment and practicing self-care can all help.
A crucial element would be to not chastise yourself too much, it is extremely difficult and you are trying your best.
The goal is for all parents to provide the best possible care for their autistic child while maintaining their own well-being.