As parents ASD raises a lot of questions for many, including does someone with autism know they have autism?
In the below article we shed some light on the topic.
Autism and oneself
Autism is a complex condition that affects millions of individuals worldwide.
It’s known as a spectrum disorder, which means that the characteristics and challenges it presents can vary significantly from person to person.
The question of if an individual knows they have autism or not is therefore complicated in itself.
There is not one answer which covers each individual. With that said however there are some factors to consider.
Does someone with autism know they have autism? This is a complicated question.
Self awareness
The degree of self-awareness in individuals with autism can vary greatly.
This is just like how it can in the neuro-typical.
Some individuals with milder forms of autism may be fully aware of their diagnosis and the challenges it presents.
They might have a deep understanding of their own strengths and weaknesses for example.
Also they may be acutely aware as to how their condition affects their daily life.
However, for others, particularly those with more severe forms of autism or intellectual disabilities, self-awareness might be limited.
These people may not fully grasp the concept of their diagnosis. It could also mean that they don’t understand the differences between themselves and their neurotypical peers.
What impacts self awareness?
As we’ve established, self awareness varies from one individual to another.
With that in mind it is worthwhile considering what impacts self awareness.
Age
Starting with probably the most obvious factor, age.
It is logical that young children with autism may not comprehend their diagnosis.
For example an autistic three year old is just learning their way around the world. The concept of neurodiversity may therefore be alien to them.
As people age through childhood into adulthood they are more likely to have a better understanding.
Communication challenges
Communication is a two way street.
Whilst many individuals with autism struggle with vocalising, the same is true for them understanding information being explained to them.
If for example an individual struggles with understanding directions and explanations, autism will likely be very confusing.
Support and education
The level of support and education an individual with autism receives plays a significant role in self-awareness.
Those who have access to appropriate resources and therapies are more likely to understand their condition.
If for example an individual lives in a remote area with no access to support, the chances of them grasping the concept of autism reduce.
Mental functioning
Sadly a number of individuals with autism can have reduced mental capacity.
But with that said intellectual abilities can vary widely among individuals with autism.
Those with higher cognitive functioning are more likely to understand their diagnosis than those with more significant intellectual disabilities.
Emotional factors
Understanding your own diagnosis of autism can carry an emotional weight.
This is both for individuals with autism and their families.
Discovering that you or your child has autism can evoke a range of emotions.
These can include confusion, denial, acceptance and empowerment.
How to explain to someone they have autism
We would assume that nearly every parent in our position has laboured this conundrum.
How do you go about explaining to your child that they have autism?
Whilst each of us will have different ideas, here are some things to consider;
Age appropriate conversations
You could probably chalk this up as stating the obvious again but it is important to have age appropriate conversations.
Tailor discussions about autism to the individual’s age and cognitive level.
Use simple language, books and visual aids as necessary.
Focus on strengths
Focus on your child’s strengths and abilities, highlighting their unique qualities that make them who they are.
Explain that autism does not define them in any way and that they are loved in every way.
Let your child ask questions
Create an environment where your child can ask questions about their condition without fear of judgment.
Explain that there is nothing off the table and you are happy to talk about it whenever they want.
Seek support
It may help to consult with autism specialists, teachers therapists and support groups.
This can help you gain insights into how to handle the conversation.
There are millions of people across the world who have been through this, opening up to other methods may help.
Focus on societies differences
Although we don’t all have autism, it is safe to say that we are all very different from one and another.
Some people wear glasses, some people have physical disabilities, some people have insomnia.
There aren’t two people who live the exact same lives. This may help your child not feel isolated.
You could also look to introduce them to groups of autistic individuals to help grow a sense of belonging to a community.
Summary – Does someone with autism know they have autism?
When considering whether individuals with autism are aware of their condition, it’s crucial to understand the spectrum itself.
Autism encompasses a wide range of abilities and challenges.
Some individuals with autism have mild symptoms and might lead relatively typical lives.
This is while others may require significant support throughout their lives.
The spectrum is not linear, and each person’s experience is unique.
Therefore in the world of autism, self-awareness varies greatly among individuals.
Some are acutely aware of their condition, while others may not fully understand or recognise it.
It’s crucial for parents and caregivers to approach this topic with compassion and patience.
Our goal is to provide the support and resources necessary to help out kids with autism better understand themselves.
Autism is not defined solely by its challenges; it is also marked by the incredible strengths.
Whatever their awareness they are an integral part of our diverse and beautiful world.
